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 Biopharmaceutical Ethics
Evolving Terminology for Emerging Technologies
Comments? Questions? Revisions?
 Mary Chitty, MSLS mchitty@healthtech.com
Last revised June 21, 2019

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American Journal of Bioethics, Bioethics.net http://ajobonline.com/ American Journal of Bioethics Online

Bermuda principles: Agreed upon coordinated rapid release of data into the public domain. Summary of principles agreed at the International Strategy Meeting on Human Genome Sequencing, Bermuda, 25th- 28th February 1996.  Wikipedia http://en.wikipedia.org/wiki/Bermuda_Principles 

bioethics: Former Bioethics Commissions* As a public resource, we offer on this page a list of all former U.S. national bioethics commissions (and one prominent international one), with all of their reports (and, where available, a downloadable copy of the report). https://bioethicsarchive.georgetown.edu/pcbe/reports/past_commissions/

CDC & ATSDR Ethics  http://www.cdc.gov/about/ethics/

ELSI: Ethical, Legal and Social Issues
ELSI NHGRI, National Human Genome Research Institute, NIH, US http://www.nhgri.nih.gov/ELSI/
Ethics & Citizen Science NIEHS, National Institute of Environmental Health Sciences, NIH, US https://www.niehs.nih.gov/research/supported/translational/peph/webinars/ethics/index.cfm

genetic privacy: http://epic.org/privacy/genetic/

Guidelines on Good Publication Practice, International Society for Medical Publication Professionals 2009 http://www.ismpp.org/gpp2

Informed consent:  Health & Human Services https://www.hhs.gov/ohrp/regulations-and-policy/guidance/informed-consent/index.html “

Intellectual property:  Intellectual property

International Bioethics Committee, UNESCO   http://www.unesco.org/new/en/social-and-human-sciences/themes/bioethics/international-bioethics-committee/

minorities and genetics: Exploring genetic issues relevant to minority communities Oak Ridge National Lab http://web.ornl.gov/sci/techresources/Human_Genome/publicat/MinorityConcerns-82.pdf

NIH Bioethics interest group  http://www.nih.gov/sigs/bioethics/

neuroethics:  Neuroethics a field that studies the implications of neuroscience for human self-understanding, ethics, and policy…. But if instead you want to ask about the essence of personal responsibility and how we should think about personal responsibility in light of neuroscience, and in light of our criminal justice system, that is something that is well beyond bioethics. It involves neuroscience, philosophy and the law. International Neuroethics Society http://www.neuroethicssociety.org/what-is-neuroethics

Nuffield Council on Bioethics, Nuffield Trust, Wellcome Foundation, Medical Research Council http://www.nuffieldbioethics.org/home/   Ethical issues arising from developments in medicine and biology. Current projects include donor conception, novel neurotechnologies and emerging biotechnologies such as synthetic biology and nanotechnology.

Policy and ethics, NHGRI, US  http://www.genome.gov/PolicyEthics/

Precautionary Principle, http://en.wikipedia.org/wiki/Precautionary_principle 

President's Council on Bioethics, archived content https://bioethicsarchive.georgetown.edu/pcbe/

public policy and biotechnology: US President's Council on Bioethics http://www.bioethics.gov/topics/biotech_index.html  

Bibliography
Kennedy Institute of Ethics, Georgetown Univ, Resources https://kennedyinstitute.georgetown.edu/resources/
NIH,Dept of  Bioethics https://www.bioethics.nih.gov/home/index.shtml
What HHS can do for your family http://www.mastersinhealthcare.com/blog/2012/hhs-for-your-family/ 

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