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Patient and disease related resources

Evolving Terminology for Emerging Technologies
Comments? Questions? Revisions?
Mary Chitty, MSLS mchitty@healthtech.com
Last revised September 10, 2019

Related glossaries include Molecular Medicine,      Cancer,     Cancer Patient Resources    Molecular Diagnostics

Bandolier, National Health Service R & D Directorate, Oxford, UK http://www.bandolier.org.uk/  Evidence based medicine.

CenterWatch http://www.centerwatch.com/  proprietary data and information analysis on clinical trials through a variety of newsletters, books, databases, market research, benchmark reports and information services used by all industry professionals involved in the management and conduct of clinical trials.

Federal Health Information Centers and Clearinghouses  National Health Information Center, Office of Disease Prevention and Health Promotion, Office of Public Health and Science, U.S. Department of Health and Human Services.  https://health.gov/nhic/pubs/clearinghouses/Default.aspx?sort=name

Genetic & Rare Disease Information Center https://rarediseases.info.nih.gov/diseases

Healthfinder^R  http://www.healthfinder.gov/   Health and wellness topics,  Personalized preventive services recommendatio

Mayo Clinic https://www.mayoclinic.org/patient-care-and-health-information  Diseases and conditions, symptoms, procedures, drugs and supplements

MedlinePlus Health Information, National Library of Medicine, US  http://www.nlm.nih.gov/medlineplus/encyclopedia.html  Medical encyclopedia 

Merck Manual of Diagnosis & Therapy   http://www.merck.com/pubs/mmanual/  

Merck Food & Fitness https://www.merckengage.com/healthy-living   Healthy eating

National Institutes of Health website  http://www.nih.gov/ http://www.nih.gov/   Use the site search engine.

National Institute on Aging Health Information A to Z   https://www.nia.nih.gov/health

Patients Like Me https://www.patientslikeme.com/  Our digital health learning system uses the most advanced technologies to help you better understand wellness, aging, and disease. As new understanding emerges, you will gain access to tools, information and connections—to people like you—to find a clearer path forward to your own future health.

PubMed (Medline), National Library of Medicine, US   http://www4.ncbi.nlm.nih.gov/PubMed/   

WebMD http://www.webmd.com/  Health A to Z, Drugs & Supplements, Living Healthy, Family & Pregnancy, News & Experts

What did my doctor say? Medical Library Association  http://www.mlanet.org/page/what-did-my-doctor-say

Patient resources
American Library Association, Reference and User Services Association, Health and Medical References Guidelines http://www.ala.org/rusa/resources/guidelines/guidelinesmedical 
Health and Human Services, What HHS can do for your family http://www.mastersinhealthcare.com/blog/2012/hhs-for-your-family/ The Department of Health and Human Services (HHS) provides the social safety net that helps struggling Americans and their families. With the recent expansion of services, many Americans may not realize that they qualify for HHS services and resources.
Medical Library Association, Find good health information: Resources for Health Consumers and patients http://www.mlanet.org/page/find-good-health-information  Here are a few ideas for filtering the available web pages to a manageable number:
Medline Plus Evaluating Health Information  http://www.nlm.nih.gov/medlineplus/evaluatinghealthinformation.html 
NCBI PubMed Health https://www.ncbi.nlm.nih.gov/pubmedhealth/about/

Biology for non-biologists   Patient resources: Cancer

The information provided herein should not be used for diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions.