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Related glossaries include: American Journal of Bioethics, Bioethics.net http://ajobonline.com/ American Journal of Bioethics Online Bermuda principles: Agreed upon coordinated rapid release of data into the public domain. Summary of principles agreed at the International Strategy Meeting on Human Genome Sequencing, Bermuda, 25th- 28th February 1996. HUGO website at one point Wikipedia http://en.wikipedia.org/wiki/Bermuda_Principles CDC Ethics Home Page http://www.cdc.gov/od/ethics/default.htm children in research, clinical trials: Drug approvals & clinical trials glossary clinical trials- ethics: Bioethics Resources on the web, Medicine and health care, Ethics and clinical trials, 2007 25 plus websites http://bioethics.od.nih.gov/ethics_clinical_trials.html ELSI: Ethical, Legal and Social Issues
ELSI NIEHS, National Institute of Environmental Health Sciences, NIH, US http://www.niehs.nih.gov/envgenom/elsi.htm Ethical, legal & social issues, DOE Human Genome Project, Oak Ridge National Lab, US http://www.ornl.gov/hgmis/elsi/elsi.html Ethical, legal & social issues Research DOE, Human Genome Project, Oak Ridge National Lab, US http://www.ornl.gov/hgmis/research/elsi.html genetic privacy: Genetics Privacy and Legislation, HGMIS, DOE, US http://www.ornl.gov/TechResources/Human_Genome/elsi/legislat.html Guidelines on Good Publication Practice, Committee on Publication Ethics, 2002 http://www.publicationethics.org.uk/cope2002/pdf2002/21330_pp48_52.pdf informed consent: General Regulations for Informed Consent, Office for Human Research Protections, NIH, DHHS, US, Code of Federal Regulations Title 45, 46.116 http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.htm#46.116 Intellectual property: Intellectual property glossary international and non-US bioethics organizations: Bioethics Resources on the web, US National Institutes of Health http://www.nih.gov/sigs/bioethics/international.html International Bioethics Committee, UNESCO http://portal.unesco.org/shs/en/ev.php-URL_ID=1879&URL_DO=DO_TOPIC&URL_SECTION=201...l Minorities, race and Genetics: Human Genome Project Information, DOE, US http://www.ornl.gov/TechResources/Human_Genome/elsi/minorities.html minorities- research: Drug approvals & clinical trials glossary NIH Bioethics on the web http://www.nih.gov/sigs/bioethics/ neuroethics: The ethics of neuroscience ... encompasses a wide array of ethical issues emerging from different branches of clinical neuroscience (neurology, psychiatry, psychopharmacology) and basic neuroscience (cognitive neuroscience, affective neuroscience). These include ethical problems raised by advances in functional neuroimaging, brain implants and brain- machine interfaces and psychopharmacology as well as by our growing understanding of the neural bases of behavior, personality, consciousness, and states of spiritual transcendence. Neuroethics, University of Pennsylvania, http://www.neuroethics.upenn.edu/ Nuffield Council on Bioethics, Nuffield Trust, Wellcome Foundation, Medical Research Council http://www.nuffieldbioethics.org/home/ Ethical issues arising from developments in medicine and biology, including genetic screening, stem cell research, xenotransplantation, GMOs, genetics and human behaviour, patenting DNA. Policy and ethics, NHGRI, US http://www.genome.gov/PolicyEthics/ Precautionary Principle, AgBioTech InfoNet, 2002 http://www.biotech-info.net/precautionary.html President's Council on Bioethics, US http://www.bioethics.gov/ Reports and background information on cloning, stem cells, genetic enhancement, patenting human life, biotechnology and public policy, sex selection, Who Owns Life? Center for Bioethics, Univ. of Pennsylvania, US http://www.bioethics.upenn.edu/prog/wol/index.shtml women and minorities- research: Drug approvals & clinical trials glossary Bibliography
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